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 Care Campaign For The Vulnerable

Care Campaign for the Vulnerable is learning of the pressures faced by conscientious led Care Providers striving to offer a caring and safe environment to both service users and staff. Safety monitoring is proving to be a invaluable care assist tool - bringing a more open and transparent culture into care homes as well as saving valuable resources within the care home sector and the NHS

Case Studies

Calls to Covid19 test care partners' who want to resume visits to elderly loved ones

Added on 5th July 2020

Desperate families are contacting Campaign for the Vulnerable calling for the Government to allow care partners to be Covid19 tested alongside carers and residents. Many say that while it's good news care staff and residents are now going to be tested in care homes many families say they are desperate to see elderly relatives many who are frail and bed bound and now calling for designated care partners to be offered testing alongside carers and residents so they can visit loved ones who 'may not have much time left.

”Care Partners must now be able to see more of our loved ones for a longer period than just half-hour once per week. I have found that Mum has forgotten who I am she used to respond to my voice and after my first half-hour visit she did not respond to me or even open her eyes, it is not long enough for me to make a difference on her getting to know me again, so sad when my half-hour was up I felt the damage has been done by not allowing visits although I know it was to keep them safe. So by testing it would help bring back more precious times it can only be a good thing” Diana.

Clinical Dementia Expert and Referral Partner to the world-leading Barrow Neurological Institute Dr Daniel Nightingale contacted CCFTV to offer his support.

''The U.K. Government need to urgently take action to ensure elderly residents, especially those living with dementia, do not die of loneliness and depression. I fully support Care Campaign For The Vulnerable and their drive to find the solution to the current care home resident levels of isolation.'' Dr Nightingale, who is the former Director of Dementia Care at the Priory Group, outlines 5 reasons why urgent action needs to be taken.

(1) People living in care homes already have increased fear and anxiety. Separation from their families increases these issues which, over a very short space of time, exacerbates existing physical illness, dementia-related symptoms and overall health and well-being.

(2) Contact, through visits, decreases ill-being.

(3) Dementia is particularly disabling, and separation from relatives leads to more confusion.

(4) The impact on relatives due to forced separation increases their feelings of fear and guilt. This leads to additional Carer stress.

(5) We must also remember the additional stress and complex health care management placed on formal (paid) caregiving teams and professionals due to the isolation of care homes residents.

Dr Nightingale adds, "We must weigh the balance between the positive impact on residents having contact with their relatives, against the possible negative outcomes. There are many great initiatives taking place that facilitate contact and now it is also time to consider Covid-19 negative tested Care Partners gaining access to loved ones. There are no excuses".

Steve and his mother who lives with dementia in a care home

I know I am not alone; there are others in my situation, their hearts breaking throughout the UK. Whilst the focus, quite rightly has been on maintaining a safe environment for our loved ones, there now has to be a focus on the emotional tie between residents and the loved ones who regularly visited them. After weeks of isolation from their loved ones, there now has to be a way to remedy this cruel separation. I am now reaching out for support, the purpose being for Matt Hancock to have heart and understand that the solution is simple. Test me, test my mum and test the carers at the same time. I am now pleading with him to activate this remedy. I am asking him to put on my shoes, just for a few moments, and to understand the heartache this is causing for both me and thousands of others. Sitting in a garden metres away from my mum is not what I call for. I am asking Mr Hancock to implement this practical solution, so that my mum and thousands of others don’t die alone, with a broken heart.'' Steve M.

Christina's husband Pete having to keep a distance when they meet once a week.

''My husband Pete has vascular dementia. I saw him all the time before lockdown. He came home to me once a week. We are very close and it breaks my heart that I can't stay with him in the care home and resume normal visiting times and spend quality time with him. I know carers and residents are being tested in care but I would like to see care partners be offered this now especially to elderly who are more vulnerable so we can resume a near-normal relationship. It's so distressing seeing my husband when he is sat at a distance from me and wants to get up to hug me and he can't. I often find myself waking up at night deeply upset.

Who knows how long he or I have left and I would be willing to get tested to enable us to be together. It's hard knowing that care professionals and carers are coming and going and I don't' see why care partners can't be allowed to visit vulnerable elderly loved ones. It breaks my heart because who knows how long this will go on and anything can happen in that time.'' Christina T.

Care Campaign For The Vulnerable Statement

CCFTV has called upon Care Providers to open up care homes for families and friends to visit loved ones after weeks apart. Whilst many providers have been innovative and established structures such as visiting pods in which families can chat to vulnerable residents, sadly as yet wives/husbands/partners have not yet been able to hug or touch each other. CCFTV is asking providers to consider Covid testing those partners and if that test is negative to allow residents and spouses with a negative test to enjoy the intimacy of touch again. Human touch is a vital part of the care process, it is soothing act and one that promotes trust and compassion. Research has confirmed that touch stimulates the release of a hormone that creates a feeling of well being and bonding’. Older people living in care homes have suffered the loss of family over lockdown, so restoring this basic human right as soon as possible is the least we should all hope for.

Reference https://www.health-ni.gov.uk/news/testing-be-available-all-care-home-residents-and-staff-minister

IF YOU HAVE A INTEREST IN THIS CASE STUDY AND WOULD LIKE TO TALK TO THE FAMILIES THAT HAVE CONTACTED CCFTV PLEASE EMAIL ccftv.cares@gmail.com AND WE WILL SEND ON YOUR DETAILS WITH PERMISSION

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Our Director's statement to why Care Campaign for the Vulnerable was set up.

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Report from Marbrook Centre in Cambridge on the benefits to safety monitoring in communal areas for residents and staff.

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Dominic Grieve Westminster Speech 2018 on Care Campaign For The Vulnerable Safety Monitoring In Care Homes

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Care Campaign Government Proposal

"The evidence from Providers who have installed CCTV seems to me to merit careful attention and to be quite persuasive"

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Safe Place Scheme

Chiltern and South Bucks District Council SAFE PLACE SCHEME has called on Care Campaign for the Vulnerable to add our support to the initiative for those who are vulnerable in the community to get help if out and about and feeling scared , lost or confused.

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Care Campaign for the Vulnerable is learning of the pressures faced by conscientious led Care Providers striving to offer a caring and safe environment to both service users and staff. Safety monitoring is proving to be a invaluable care assist tool - bringing a more open and transparent culture into care homes as well as saving valuable resources within the care home sector and the NHS

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