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 Care Campaign For The Vulnerable

Care Campaign for the Vulnerable is learning of the pressures faced by conscientious led Care Providers striving to offer a caring and safe environment to both service users and staff. Safety monitoring is proving to be a invaluable care assist tool - bringing a more open and transparent culture into care homes as well as saving valuable resources within the care home sector and the NHS

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I would like to say a big thank you to Care Campaign For The Vulnerable for all your love and support during my long journey in receiving justice due to my Dad’s appalling care in a care home . We couldn’t of done this without you . Much love Joanne and Josie x

Joanne - 15/09/2020

So many thanks for your help and support at this most stressful time, my husband has to go into care and I just didn't know where to turn for help. Luckily for me Care Campaign for the Vulnerable appeared on TV, the next day I phoned Care Campaign for the Vulnerable and they listened and told me exactly what to do at this difficult time. So thankful for all your help.
Lorna
17. Aug. 2020

Lorna Hickey - 17/08/2020

I can not put into words how much you have helped me. You have listened to my concerns, gave me hope and strength to fight for my dearest love one at a time when I was so deflated, upset and anxious ... you actually care which has touched my heart hoping for positive results and closure. Thank you will never ever be enough . Nancy.

Nancy Griffiths - 23/07/2020
CCFTV replied...

Nancy

Sometimes families navigating the care sector can find it a very lonely place. We are so pleased you feel supported and we are so sorry you and you family faced such difficulty in the care of your loved one. Rest assured we will always be here if you need us.

I just would like to say to Care Campaign for the Vulnerable thank you so much for your help - I I feel like I am not alone. I had not seen my dear husband since lock down and to see him today was wonderful. Thank you for all you are doing.

Christina thorpe - 12/06/2020

I have never seen a more relatable and vital site for both staff and families within the care home industry during these difficult times. It is so important that we all support one another and this is an amazing place to do this. I cannot believe the hard work that you do , so thank you so, so much for all you have done, from a staff nurse.

Lorraine Gardner - 30/05/2020
CCFTV replied...

Lorraine

Thankfully the sector has more care workers who are dedicated in taking care of our most vulnerable then not and those professionals that offer this continued dedication and ongoing commitment should be highly rewarded. Thank you for your support to Care Campaign for the Vulnerable, it’s greatly appreciated.

I think the work CCFTV are doing is incredible and I just wanted to share this with you to confirm what you already know. I think you are all amazing. Thank you for your tireless work. All best wishes to you.

Esther - 28/04/2020

My mum is in a nursing home in Scotland and was verbally abused by a carer. When we made a complaint to management my mum was served with eviction notice within 28 days. This upset me greatly so I decided to set up petition to have law changed that elderly can't be evicted for family complaining. We have since been banned from contacting my mum on a page the home had for families. The manager put up a post on this page making slanderous allegations investigating by the police but that the families allegations were false. I think this is very unprofessional conduct by a manager. Now we have grave concerns over my mum that something more than verbal abuse took place. My mum has vascular dementia heart condition suffers seizures and has had several strokes. Anytime family complain we are threatened with eviction. Surely this can't be right we are all concerned for my mum we can't contact her ?”

Susan B - 20/04/2020
CCFTV replied...

Hello Susan

We are very concerned to read your message.

No family should be afraid to complain if legitimate care concerns happen. A good manager and provider would ensure any issues be addressed and work together with the family for the sake of the resident.

Sadly it sounds like the relationship has broken down between you, your family and management. Not knowing the full details it’s very difficult to comment further. However, sometimes notice to quit can be in the best interest of a loved one especially if care concerns are not being addressed. We understand how this can bring deep distress. The priority here is your loved one. Please e mail us on the contact section page and we will try to assist advise you further.

I would like to raise awareness to how poorly our elderly are treated and even more so with dementia .
My mum was in a care home ( not nursing ) she took ill two weeks ago
We were told it was a chest infection. No symptoms for covid -19.
Mum was given antibiotics but as we know they don’t always work , Sunday last week I asked the care home call 111 for a doctor to come out . The doctor gave mum more antibiotics and advised it was a chest infection . The doctor said she needed hospital but again told us to wait see if the antibiotics kick in over the next twenty four hours . Due to lack of knowledge & training as they are only HCA ‘s ,mum mum was just left
I face timed mum Tuesday and I could see how very poorly mum was & insisted they call 111 . The doctor called me at 2 am to say he had spoken to the home staff, and the kindest thing for mum was to prepare for end of life. No one saw mum , the staff have no nursing qualifications. How can he make this call?.
I called mums new GP the following morning, he knew I was stressed & upset , assuring me he would get the paramedics to go check mum out.
He spoke to the home called me back told me no he wasn’t doing that , she was end of life. I asked , begged in fact , the home to call paramedics , they told me it would be classed as safe guarding if they called them .
The senior director went to assess mum and her words , she called back and said no more actions to be taken she was end of life . No one has a medical background.
They allowed me to put PPE on and visit mum . Then mum was left with no medication at all, no end of life comfort in our view was given .
Mum tested positive to corona yesterday & she passed away on her own around 6.30 pm .
They had promised me they would be with her but no one was .
I know the carers have tried their very best as I know they felt powerless ..
Heartbreaking to think my wonderful mum was treated like this & no one would help or listen.
I understand we are in a pandemic & it’s awful times but procedures
Should have been put in place to help & treat the elderly .
I will fight for all the others in honour of my mum. .

Cheryl Harrison - 18/04/2020
CCFTV replied...

Cheryl

Thank you for your message.

... and now your story has been heard . It’s devastating losing a parent but it’s unthinkable to know you couldn’t be there with them at the end. The pandemic is certainly bringing unthinkable challenges to the sector and we must praise staff and providers who are going above and beyond. But we are receiving far too many heartbreaking messages like yours mirroring your experience and we know that testing must be prioritised in care homes and our care staff must also be prioritised.

We can’t imagine you or your family’s pain and again , we send our heartfelt condolences for your loss. We are adamant Care Campaign For The Vulnerable will call publicly for better transparency in the care of our loved ones especially during this unprecedented time.

I've been overwhelmed with the support and information I've received from Care Campaign for the Vulnerable. I really could not have coped with the pressure over the last few weeks if it hadn't been for the constant contact I’ve had from this organisation. My Mother’s situation started to change at such speed when they become involved. I will always be grateful for the vast amount of knowledge, comfort and support Care Campaign for the Vulnerable has provided my mother and myself with.
Thank you.

Tracey Goddard - 18/04/2020
CCFTV replied...

Tracy thank you so much. We are so very pleased your mum is now out of hospital and in a care home. Always here if you or your mother need further support.

I am deeply impressed with Care Campaign for the Vulnerable. I could not believe how quickly you got back to me, within an hour of my first call to you asking for advice and help. Not only was the advice reassuring, but you also put me and my family in contact with CQC, as well as explain to them our situation. So within the space of just a couple of hours, we were receiving great support and solid advice. Brilliant. A huge thank you.

Robert

Robert Green - 18/04/2020
CCFTV replied...

Robert

Thank you so much. So pleased you feel you are now better supported.

Always here if you require further advice.

Many thanks, this website is very handy

RogerpesMS - 10/02/2020

hi our son lives in his own home and recently started having agency staff we have always had a cctv camera in his room and bathroom, and he knws its there to keep him safe. Unless there is an incident it was rarely looked at. Now safeguarding are coming in as we have had a recent near theft by a carer of sons belongings and they more concerned we have cctv cameras which are also there to protect them if he had a challenging behaviour incident. Our son is very distressed as he lost a carer and now social services are coming in to ask questions and he does not want to talk to them. we hold the LPA and he wants dad or me to talk for him as is his right. I can see the rules regarding cctv in care homes but what about your own home with the persons consent

Suzanne Morrison - 31/10/2019
CCFTV replied...

Suzanne

Thank you for your message and sorry to hear your concerns.

If a client is receiving funded care then social services may want to be aware of these cameras and you would need to check on the legal position. You could contact UKHCA (United Kingdom Home Care Association) and they will be able to advise you or the CQC on their website regarding cameras in home care.

Please let us know how you get on it if we can help you further.

As a family, we have gone through the very traumatic and harrowing experience of my Mother sustaining 'unexplained injuries' within a care home in Wellingborough. The management (at that time) being in complete denial, defensive and totally lacking in any compassion. In conclusion and after a so called internal investigation, my Mother's injuries were found to be 'self inflicted' !!!

I have just read the most recent CQC report on this particular Home and its findings are damning - rated INADEQUATE and under 'Special Measures'.
I feel vindicated for my concerns and for the stance I took then (2018).

I would encourage any family that if they have any concerns whatsoever, regarding the care of their loved ones, they should raise them immediately without hesitation.

I just wanted Jayne Connery to be aware of this as she was of great support to me, at that difficult time.
Thank you, Care Campaign For The Vulnerable, for all the work that you continue to do and for all the awareness that you raise!

Donna Reynolds

Donna R. - 03/07/2019
CCFTV replied...

Donna

We remember you and your case very well.


The difficulty in care that's reported to us is the lack of transparency with some providers and the stress facing families like yours who demand to know how injuries happen to their loved ones. This is a reasonable request and in any walks of life if a person sustains injuries then answers to how these injuries happen should be offered. We know that in many cases the not knowing brings doubt and with doubt brings mistrust, It seems families like yours report to us that they feel a ''cloak of silence'' appears and families feel they have a lack of support with various agencies, some even reciting that they feel'' very much out excluded''. This should never be the case when un-witnessed and unexplained injuries happen in a care settting towards a loved one innocently or not. We are pleased you moved your loved one into a better care environment and thank you for your support to Care Campaign For The Vulnerable

I was shocked by the Radio 4 package today highlighting the lack of oral care for vunerable people in Residential care. There should be an assessment of oral needs as laid down in the Nice Guidlines upon admission. One case highlighed the staff were not aware a lady had dentures It is likely they had not been removed for 2 years. The dentures were removed in A&E !!!!

Robert - 24/06/2019
CCFTV replied...

Hi Robert

We received many messages from families in care telling of loved ones raising issues to oral hygiene as well as lack of knowledge on hearing aids. This is basic care and often left to a family to administer these important care needs.

My brother has dementia and is doubly incontinent and lives with me. I am his full time carer. For one week respite social services found him a placement at a care home listed as GOOD by the CQC. A week later he came home smelling like a vagrant - had not been washed, shaved or changed, wearing someone elses trousers. I contacted the home straight away to ask where all his clothes were and was told they must still be in the laundry. He also had bad urine burns it took six months to heal. We never did get his clothes back. I complained to the CQC and was told by a social worker they were going to hold a safeguarding meeting - everything went quiet and ten weeks later I had a visit from an admiral nurse who asked me how I had got on at the meeting....nobody had told me where or when the meeting was being held, but the social worker had told her I had attended. I asked to see the results of the meeting and eventually I got a letter stating that as no notes or daily records had been documented during my brothers stay - barely any proof that he'd actually stayed there - apart from the missing clothes they advised me to go and look for myself, everything else was classed as unsubstantiated (swept under the carpet) Two years later the CQC removed seventeen residents and shut the place down. I only placed him there as the CQC rated it as GOOD.

GS - 19/06/2019
CCFTV replied...

Hi GS

We agree that in too many cases brought to us families are facing many challenges and concerns with family members being placed in a care home for respite. It's evident that any CQC inspection can only get a snap shot of care delivery over a couple of days. It's been documented that in some GOOD rated care homes have in fact failed in their responsibility to deliver good safe care. Saying this, we know the CQC are a very important organisation doing much good but we feel safety monitoring would help extensively in their inspection process and bring in a extra layer of transparency for vulnerable residents and care staff.

The abuse to my mum has haunted me and my family. I am finding it hard to come to terms this could happen to a 84 year old lady in a care setting. It took two weeks for the Directors to say sorry this had happened. I’ve have no support since. I phoned CQC with my concerns and the Inspector said he was going to raise a safeguarding to the local authority. He then followed , with “ Have you thought about moving your mum , there are SOME good homes in your area”. I was shocked. As the daughter of a mum whose been abused and worrying if mum is being treated respectfully , the thought of unsettling mum to her detriment, to find availability in a suitable home, one where she isn't going to be mistreated again would be a huge undertaking.

This could all be resolved through having CCTV in communal areas. It would also helped the police with their investigations immeasurably as there are questions that need to be investigated by them as to relevant carers comings and goings , which is a huge drain on their resources and time when these could be answered simply by CCTV.

CCTV for us offers reassurance and security to the residents and families on so many levels that’s why I am supporting safety monitoring in care homes”.

Ms L.

Miss L - 19/06/2019

I just came across your website after reading a very sad story on facebook of abuse towards a lady in a care home. It was shocking..I think what the Care Campaign are doing is amazing. Thank you..

Annon - 08/05/2019

My mum has many unexplained injuries,there have been carers who have refused to help her with toileting, 2 of the staff were supposed to be appearing at disciplinary investigation, I was assured they would not have contact with my mum again. I have never been told the outcome of this and one of the carers is back working with my mum again.
I keep complaining, but don't feel I'm listened to, I'm afraid to complain too much in case they tell her to leave. What should I do?

Belinda of London - 26/04/2019
CCFTV replied...

Hello Belinda

We are very sorry to hear your poor care experience and in the first instance we would suggest you contact the Home Manager as well as
sending a e mail correspondence to the provider asking for a investigation outcome.

The concern your family could face if you complain with being asked to leave is a real concern with many families and one Care Campaign for the Vulnerable hears regularly. We never accept and we condemn any care home that makes any family feel this way when raising legitimate care concerns.

We are happy to offer our support to you to ensure your concerns are adhered to and we will e mail you confidentially if you can send in your contact details through our contact section.



PLEASE stop residents being thrown out of care homes .

This happened to us December 2018 .Both our parents were in the same home. Mum had Dementia and had been in the home for 5 years she was well looked after until new owners took over she was 94 Dad was in there for just over a year he was nursing about 5 weeks after he passed away. We received the letter to remove Mum - they gave us 28 days it was the worst time of our lives. I have all the letters from the care home. I lodged a complaint with CQC and CCG but have not heard anything back .Sadly Mum passed away 3 weeks ago the care home we moved her to were so good at least Mum passed well cared for .I am sorry BUT THIS HAS TO STOP..We were NOT distruptive relatives but we did question the homes care.

Sue Harris - 17/04/2019

I have been advocating for CCTV in care homes for a long time .
It’s a necessatity.
It would protect the vulnerable and be a great asset in any care setting.
You have my 100% support and please feel free to use my name .
I am a dementia advocate.
I have been asking for a national 24/7 dementia helpline too.
One day hopefully it will come.

Derek Fisher - 05/03/2019

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Our Director's statement to why Care Campaign for the Vulnerable was set up.

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Report from Marbrook Centre in Cambridge on the benefits to safety monitoring in communal areas for residents and staff.

Download

Dominic Grieve Westminster Speech 2018 on Care Campaign For The Vulnerable Safety Monitoring In Care Homes

Download our

Care Campaign Government Proposal

"The evidence from Providers who have installed CCTV seems to me to merit careful attention and to be quite persuasive"

Dominic Grieve MP

Just some of the Care Providers who support our CCTV Safety Monitoring in Care Homes

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Download their 'Safety Monitoring In Communal Areas in Care Homes' document

Safe Place Scheme

Chiltern and South Bucks District Council SAFE PLACE SCHEME has called on Care Campaign for the Vulnerable to add our support to the initiative for those who are vulnerable in the community to get help if out and about and feeling scared , lost or confused.

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Care Campaign for the Vulnerable is learning of the pressures faced by conscientious led Care Providers striving to offer a caring and safe environment to both service users and staff. Safety monitoring is proving to be a invaluable care assist tool - bringing a more open and transparent culture into care homes as well as saving valuable resources within the care home sector and the NHS

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