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There are times in life that even the most capable of us need help and guidance .

When the struggle and constant battles with care homes social services gets to be so overwhelming .and there seems to be no help no understanding no one to listen. Along came CCCTV and Jayne. It was suggested I contact Jayne from my daughter’s support group. I didn’t know of her organisation or her work. After some correspondence we spoke on the phone and that in itself was invaluable and knowing Jayne is so busy with some of the most harrowing cases it was so appreciated that she made time in her busy schedule.

My 85 year old father is due to move to his 5th home and after a particularly harrowing meeting with 6 people involved in my dad's care when i was possibly at my lowest Jayne agreed to support me on any future meetings.

Without being too dramatic that alone felt like seeing an oasis in the desert.

Jayne supported me at a meeting and just her presence had a calming effect and her knowledge advice, and input was invaluable.

Sometimes in life you just meet one of those people who manage to be so selfless and to want to change things for others because of their own experience - there is not enough admiration.

Her work for cameras in nursing home is inspiring and would go someway to protect our loved ones and make homes delivering poor care accountable especially for unwitnessed falls and injuries.

I know in my own experience with my dad's unexplained bruising and finding a restraining glove in his room the campaign for cameras would of meant I could of seen who entered my dad's room. The work that jayne so tirelessly does must be so distressing and she always takes the time and makes such a difference to vulnerable people and their families
You are many people’s not “Joan of Arc” but “Jayne of Arc”.
A BIG thank you for all you do
.

There are times in life that even the most capable of us need help and guidance . When the struggle and constant battles with care homes social services gets to be so overwhelming .and there seems to be no help no understanding no one to listen. Along came cctfv and jayne connery. It was suggested I contact jayne from my dementia daughter support group. I knew nothing of her organisation or her work. After some correspondence we spoke on the phone and that in itself was invaluable and knowing jayne is so busy with some of the most harrowing cases was so appreciated that she made time in her busy schedule.
My 85 year old father is due to move to his 5th home and after a particularly harrowing meeting with 6 people involved in my dad's care when i was possibly at my lowest jayne agreed to support me on any future meetings.
Without being too dramatic that alone felt like seeing an oasis in the desert.
Jayne supported me at a meeting and just her presence had a calming effect and her knowledge advice inputwas invaluable
Sometimes in life you just meet one of those people who manage to be so selfless to want to change things for others because of their own experience there is not enough admiration.
Her campaign for cameras in nursing home is inspiring and would go someway to protect our loved ones make homes accountable for unwitnessed falls injuries.
I know in my own experience with my dad's unexplained bruising and finding a restraining glove in his room the campaign for cameras would of meant I could of seen who entered my dad's room .the work that jayne so tirelessly does must be so distressing and she allways takes the time her time and makes such a difference to vulnerable people and their families
You are many peoples not Joan of arc. But jayne of arc.
Big thankyou for all you do
.

My Mum was first diagnosed with Alzheimer’s some 15 years ago. After much consideration, as her memory was beginning to deteriorate, it was decided that she be moved to a care home.

The first facility was carefully chosen, despite being further away than I would have liked, but I was very happy with it. However, circumstances at the home changed and my Mum was failed, resulting in two hospital admittances. Paramedics were extremely unhappy with the lack of support by the Manager and staff and, as a result, they submitted a report to Social Services. I moved my Mum to another home closer to me.

Once again, the second home began well. It was convenient that this home was fairly close to me, so I could pop in and out whenever I liked. Unfortunately, the Manager was given notice and the home very quickly went downhill. Social Services intervened and insisted I move my Mum to another home.

The third home was not too far from the second. Social Services informed me that the rating wasn’t very good, but they found the home to be acceptable. I took a chance, as the staff appeared to be very friendly and helpful, albeit there was no Manager in place. Staff came and went and I became concerned for my Mum’s welfare, calling in an outside private Occupational Therapist, as Social Services refused to help in this regard.

When I found it necessary to report to the CQC regarding my Mum’s care at the third home, the owners appeared to know all about it. This made trying to resolve the issues extremely difficult. As I had called in an outside OT, the owners were most upset by this and served my Mum an eviction notice.

I had previously been introduced to Jayne Connery, Founder of Care Campaign for the Vulnerable, some time before. We had spoken on many occasions, and she was incredibly helpful, having vast experience of dementia. On this occasion, Jayne offered to visit the home in order to mediate with either the transition to a new home or, perhaps, discuss whether there was any way to resolve various issues that had arisen. There was consideration that this would be a third move for my Mum, and would more than likely be very disruptive for her. A Best Interests Meeting was held and, again, Jayne attended. Sadly, the owners were not willing to allow my Mum to remain at the home and, in any event, Jayne and I felt that it was probably the best option for my Mum to move to another home. It was decided that she be moved to a fourth home, of which I already had knowledge.

The fourth, and final care home, was over half an hour’s drive away, which meant I wouldn’t be able to visit quite as often. However, having previous experience of the home , as an entertainer, I felt very comfortable with the care she received there. Nevertheless, sadly, events took a downward turn and my Mum was failed, once again. My visit, on one particular day, resulted in my calling an ambulance. Paramedics arrived and were unable to hydrate my Mum. She was very poorly indeed. Luckily, I was able to hydrate her. Paramedics were extremely concerned that they couldn’t find any carers at the home. The reason being that there was one carer for 51 residents on that particular day. The home was reported to Social Services by the paramedics and I was berated by the owners for calling an ambulance and, it seems, for saving my Mum’s life.


This time, I decided that I could not chance placing my Mum in yet another home. Whatever the move, it had to be the final one and I wanted to bring my Mum home with me. I called Jayne to let her know and she stepped in immediately. I don’t know what I would have done without her.

Jayne remained available to discuss matters and advised, where necessary. Nothing was too much trouble. She contacted the home to advise that she would act as my Advocate and was instrumental in a smooth transition of the move to my home. With no thanks to Social Services for passing me from pillar to post, the move took four months, but we achieved our goal and my Mum has been with me for almost 18 months. She has put on over a stone in weight and although there isn’t anything we can do about her failing memory and being non communicative, she is in a safe, loving environment and thriving.

Since first meeting Jayne, some years ago, she has advocated for CCTV in care homes. My own experience, through my work as an entertainer, and my Mum’s history, has highlighted on many occasions how CCTV would improve the safety of residents and employees whilst keeping the premises and property within secure.

Despite Jayne’s ever increasing schedule, she always makes time for an update. Her help and guidance for my Mum and my family has been invaluable and I couldn’t recommend Jayne at Care Campaign for the Vulnerable highly enough.

Joy Dey

CCFTV are amazing, kind-hearted and wonderful people. The support provided by Jayne to my dad who has severe Alzheimer's disease, and also to me and my family has been invaluable. There are many organisations that provide excellent resources to guide patients and families when their loved ones are suffering from dementia but what is especially good about CCFTV is that they strongly advocate for vulnerable people on an individual level, provide objective and experienced advice, and clearly care about vulnerable people. I was particularly impressed that Jayne actually went to visit my dad in the nursing home in order to learn about the issues with his care before advising us. The guidance and advice she gave us provided us with expert insight and definitely helped to guide us in taking the most appropriate action. In addition to being a great advocate for my dads health care needs, Jayne has also been an incredible source of emotional support for my family. CCFTV has been the single biggest source of advice and support for us, and have helped to ensure my dad gets the quality of care he needs and deserves. Thank you Jayne and CCFTV!

I am touched and have inadequate words to express my gratitude to CCFTV, especially its Director Jayne Connery, for all the support, guidance and words of encouragement you have given me over the past few weeks. You brought my confusion of a very stressful situation into a clarity that has allowed me some peace instead of total torment. Unless one has experienced the dedication, understanding ,support and time you give it would be hard to believe it is fact and not fiction. Simply saying thank you does not seem enough, but THANK YOU from the bottom of my heart.

Excellent article. I'm experiencing a few of these issues as well..

I was directed to Jayne from a friend who had been supported by CCFTV and I am so glad I did. Whilst its only been around a month or so since I contacted CCTFV one constant has remained and helped to keep me focussed on getting my father out of the home that is neglecting him and that is Jayne Connery. I am having regular weekly meetings with the Wiltshire Adult Social Care Team and Jayne attends these online meetings with me and my husband and her support, knowledge and caring attitude are abundant in spades and for that I will be forever grateful. Supporting both my mother and father, albeit my mother is in a wonderful home and has been for two years the journey with my 84 year old father with now Advanced Alzheimer's Dementia has been the toughest fight of my entire life and one that I will not give up on until my father gets the care, kindness, empathy and human rights he deserves. Thank you so much CCFTV and Jayne for your continuous support day or night when things get so tough I do not know which way to turn and mostly for showing such dignity and respect for my good ol' Dad who cannot thank you himself as he just does not understand the help and support you are giving but I know if he could he would have given you a huge tight bear hug and thank you from the bottom of his heart for supporting 'my Trace' as you have. Much love and gratitude to you all and especially Jayne.

I can't thank Jayne and the Care Campaign For The Vulnerable enough.

From receiving an eviction notice for mum out of the blue when I asked to be an Essential Care Giver to moving mum into her new care home, she has given 100% support in what has been a very difficult and devastating time for us.

Not knowing where to turn to for help and guidance through what we have experienced she has been nothing short of amazing. She has supported us in correspondence and meetings giving us a voice.

The fact that care homes can so easily evict people for whatever reasons they choose is disgraceful, eviction should be the last resort when all other avenues have been explored. Relatives should have the right to air concerns whatever they are without the threat of their loved ones placement being terminated. There is no law to protect the elderly when they are at their most vulnerable time in their lives.

Don't hesitate to contact CCFTV, they have so much knowledge in the sadly declining adult care system.

I want to say a MASSIVE and continuing THANK YOU to Care Campaign for the Vulnerable and especially Jane for her immense support and understanding at a time of enormous stress and anxiety caused unnecessarily by the owner, management and the system of care.

We are in the middle of a care home eviction which was sprung on us by the home and social services with no related correspondence or phone conversations or warning and if it had not been for a friend alerting us to CCFTV, our family would have been suffering even more than we are already.

If you are going through care difficulties but if you need help, these are the people to support you and help you understand the system and protect your loved ones.

The whole care system needs help…and this team are really taking it to the top. We need to support them too and make a difference.

Care Campaign for the Vulnerable supported us through a very difficult period after our mum died within her care home when we reported failings/neglect in her care. They have been on hand to support us at meetings and assisted us throughout and helped us raise awareness in our mum’s case. The support we have received has meant the world to us . The work they carry out is so important and I hope they in turn are supported in their efforts to protect the vulnerable and hope a public enquiry ensues .

Anna Gibsons family

Care Campaign for the Vulnerable have been supporting us since November. My mum died alone in her care home from covid and received no medical help or assistance. There has been a multitude of care issues and the challenges I faced have been eased by the support from this organisation. I truly feel I have a voice with Care Campaign for the Vulnerable by my side and this is invaluable. I can’t thank you enough for helping me in my fight for justice for my mum. What an important role you undertake each day .

Thank you so much for willing to take our cause and support us with what we believe to be an important issue regarding strategic and safe placing of the key safe. As you know, the key safe was placed in clear view and at eye level outside our front door which I believe was the main cause of the break-in with the key from the safe, to the front door; causing much trauma to our mother in her last few months.
Care Campaign For The Vulnerable helped my brother and I to feel confident with what we believed was very unsafe and careless on the part of the local council who showed very little respect and duty of care towards our mother.
Together, we may have succeeded in helping others to be safe in their own homes. We are full of gratitude and appreciation of your work and your stamina and support your worthy cause.

Roz

We have been liaising with Care Campaign For The Vulnerable for the last three months or so leading up to and in the months following, my mother's passing in a care home, which denied my sister and I access at the end of her life. Having lost our father in March this year, to cancer and being with him when he passed, we cannot stress how important this is and how devastating it's been for our family, not to be with our mother. I can honesty say that CCFTV has thrown us a lifeline, to believe in ourselves that we can challenge the care sector and through this we have felt 100% supported throughout this difficult time. CCFTV team do a fantastic job, providing support and empathy to families in similar situations to ours - we cannot thank you enough for this.

On the way to work this morning i heard one of your staff talking on the BBC Radio programme and was very impressed and profoundly pleased with the concern she showed and campaign that you are running . I have lived with my mother all my life she is 82 and i am 56, at the beginning of March she had to go into a Care/Nursing Home (who are excellent ) with
a highly aggressive form of dementia and Alzheimars as well as mobility problems . Though the Care Centre have tried their very best i have only managed to see her four times and she is unable to talk on the phone. I feel that the light as gone from my life and i miss her with such devastation and depth of loss and so very guilty too . I really just wanted to say thank you so very much for all you do, please keep up your wonderful work.
Your always
Paul

I would like to say a big thank you to Care Campaign For The Vulnerable for all your love and support during my long journey in receiving justice due to my Dad’s appalling care in a care home . We couldn’t of done this without you . Much love Joanne and Josie x

So many thanks for your help and support at this most stressful time, my husband has to go into care and I just didn't know where to turn for help. Luckily for me Care Campaign for the Vulnerable appeared on TV, the next day I phoned Care Campaign for the Vulnerable and they listened and told me exactly what to do at this difficult time. So thankful for all your help.
Lorna
17. Aug. 2020

I can not put into words how much you have helped me. You have listened to my concerns, gave me hope and strength to fight for my dearest love one at a time when I was so deflated, upset and anxious ... you actually care which has touched my heart hoping for positive results and closure. Thank you will never ever be enough . Nancy.

I just would like to say to Care Campaign for the Vulnerable thank you so much for your help - I I feel like I am not alone. I had not seen my dear husband since lock down and to see him today was wonderful. Thank you for all you are doing.

I have never seen a more relatable and vital site for both staff and families within the care home industry during these difficult times. It is so important that we all support one another and this is an amazing place to do this. I cannot believe the hard work that you do , so thank you so, so much for all you have done, from a staff nurse.

I think the work CCFTV are doing is incredible and I just wanted to share this with you to confirm what you already know. I think you are all amazing. Thank you for your tireless work. All best wishes to you.