Comments

CCFTV are amazing, kind-hearted and wonderful people. The support provided by Jayne to my dad who has severe Alzheimer's disease, and also to me and my family has been invaluable. There are many organisations that provide excellent resources to guide patients and families when their loved ones are suffering from dementia but what is especially good about CCFTV is that they strongly advocate for vulnerable people on an individual level, provide objective and experienced advice, and clearly care about vulnerable people. I was particularly impressed that Jayne actually went to visit my dad in the nursing home in order to learn about the issues with his care before advising us. The guidance and advice she gave us provided us with expert insight and definitely helped to guide us in taking the most appropriate action. In addition to being a great advocate for my dads health care needs, Jayne has also been an incredible source of emotional support for my family. CCFTV has been the single biggest source of advice and support for us, and have helped to ensure my dad gets the quality of care he needs and deserves. Thank you Jayne and CCFTV!

I am touched and have inadequate words to express my gratitude to CCFTV, especially its Director Jayne Connery, for all the support, guidance and words of encouragement you have given me over the past few weeks. You brought my confusion of a very stressful situation into a clarity that has allowed me some peace instead of total torment. Unless one has experienced the dedication, understanding ,support and time you give it would be hard to believe it is fact and not fiction. Simply saying thank you does not seem enough, but THANK YOU from the bottom of my heart.

Excellent article. I'm experiencing a few of these issues as well..

I was directed to Jayne from a friend who had been supported by CCFTV and I am so glad I did. Whilst its only been around a month or so since I contacted CCTFV one constant has remained and helped to keep me focussed on getting my father out of the home that is neglecting him and that is Jayne Connery. I am having regular weekly meetings with the Wiltshire Adult Social Care Team and Jayne attends these online meetings with me and my husband and her support, knowledge and caring attitude are abundant in spades and for that I will be forever grateful. Supporting both my mother and father, albeit my mother is in a wonderful home and has been for two years the journey with my 84 year old father with now Advanced Alzheimer's Dementia has been the toughest fight of my entire life and one that I will not give up on until my father gets the care, kindness, empathy and human rights he deserves. Thank you so much CCFTV and Jayne for your continuous support day or night when things get so tough I do not know which way to turn and mostly for showing such dignity and respect for my good ol' Dad who cannot thank you himself as he just does not understand the help and support you are giving but I know if he could he would have given you a huge tight bear hug and thank you from the bottom of his heart for supporting 'my Trace' as you have. Much love and gratitude to you all and especially Jayne.

I can't thank Jayne and the Care Campaign For The Vulnerable enough.

From receiving an eviction notice for mum out of the blue when I asked to be an Essential Care Giver to moving mum into her new care home, she has given 100% support in what has been a very difficult and devastating time for us.

Not knowing where to turn to for help and guidance through what we have experienced she has been nothing short of amazing. She has supported us in correspondence and meetings giving us a voice.

The fact that care homes can so easily evict people for whatever reasons they choose is disgraceful, eviction should be the last resort when all other avenues have been explored. Relatives should have the right to air concerns whatever they are without the threat of their loved ones placement being terminated. There is no law to protect the elderly when they are at their most vulnerable time in their lives.

Don't hesitate to contact CCFTV, they have so much knowledge in the sadly declining adult care system.

I want to say a MASSIVE and continuing THANK YOU to Care Campaign for the Vulnerable and especially Jane for her immense support and understanding at a time of enormous stress and anxiety caused unnecessarily by the owner, management and the system of care.

We are in the middle of a care home eviction which was sprung on us by the home and social services with no related correspondence or phone conversations or warning and if it had not been for a friend alerting us to CCFTV, our family would have been suffering even more than we are already.

If you are going through care difficulties but if you need help, these are the people to support you and help you understand the system and protect your loved ones.

The whole care system needs help…and this team are really taking it to the top. We need to support them too and make a difference.

Care Campaign for the Vulnerable supported us through a very difficult period after our mum died within her care home when we reported failings/neglect in her care. They have been on hand to support us at meetings and assisted us throughout and helped us raise awareness in our mum’s case. The support we have received has meant the world to us . The work they carry out is so important and I hope they in turn are supported in their efforts to protect the vulnerable and hope a public enquiry ensues .

Anna Gibsons family

Care Campaign for the Vulnerable have been supporting us since November. My mum died alone in her care home from covid and received no medical help or assistance. There has been a multitude of care issues and the challenges I faced have been eased by the support from this organisation. I truly feel I have a voice with Care Campaign for the Vulnerable by my side and this is invaluable. I can’t thank you enough for helping me in my fight for justice for my mum. What an important role you undertake each day .

Thank you so much for willing to take our cause and support us with what we believe to be an important issue regarding strategic and safe placing of the key safe. As you know, the key safe was placed in clear view and at eye level outside our front door which I believe was the main cause of the break-in with the key from the safe, to the front door; causing much trauma to our mother in her last few months.
Care Campaign For The Vulnerable helped my brother and I to feel confident with what we believed was very unsafe and careless on the part of the local council who showed very little respect and duty of care towards our mother.
Together, we may have succeeded in helping others to be safe in their own homes. We are full of gratitude and appreciation of your work and your stamina and support your worthy cause.

Roz

We have been liaising with Care Campaign For The Vulnerable for the last three months or so leading up to and in the months following, my mother's passing in a care home, which denied my sister and I access at the end of her life. Having lost our father in March this year, to cancer and being with him when he passed, we cannot stress how important this is and how devastating it's been for our family, not to be with our mother. I can honesty say that CCFTV has thrown us a lifeline, to believe in ourselves that we can challenge the care sector and through this we have felt 100% supported throughout this difficult time. CCFTV team do a fantastic job, providing support and empathy to families in similar situations to ours - we cannot thank you enough for this.

On the way to work this morning i heard one of your staff talking on the BBC Radio programme and was very impressed and profoundly pleased with the concern she showed and campaign that you are running . I have lived with my mother all my life she is 82 and i am 56, at the beginning of March she had to go into a Care/Nursing Home (who are excellent ) with
a highly aggressive form of dementia and Alzheimars as well as mobility problems . Though the Care Centre have tried their very best i have only managed to see her four times and she is unable to talk on the phone. I feel that the light as gone from my life and i miss her with such devastation and depth of loss and so very guilty too . I really just wanted to say thank you so very much for all you do, please keep up your wonderful work.
Your always
Paul

I would like to say a big thank you to Care Campaign For The Vulnerable for all your love and support during my long journey in receiving justice due to my Dad’s appalling care in a care home . We couldn’t of done this without you . Much love Joanne and Josie x

So many thanks for your help and support at this most stressful time, my husband has to go into care and I just didn't know where to turn for help. Luckily for me Care Campaign for the Vulnerable appeared on TV, the next day I phoned Care Campaign for the Vulnerable and they listened and told me exactly what to do at this difficult time. So thankful for all your help.
Lorna
17. Aug. 2020

I can not put into words how much you have helped me. You have listened to my concerns, gave me hope and strength to fight for my dearest love one at a time when I was so deflated, upset and anxious ... you actually care which has touched my heart hoping for positive results and closure. Thank you will never ever be enough . Nancy.

I just would like to say to Care Campaign for the Vulnerable thank you so much for your help - I I feel like I am not alone. I had not seen my dear husband since lock down and to see him today was wonderful. Thank you for all you are doing.

I have never seen a more relatable and vital site for both staff and families within the care home industry during these difficult times. It is so important that we all support one another and this is an amazing place to do this. I cannot believe the hard work that you do , so thank you so, so much for all you have done, from a staff nurse.

I think the work CCFTV are doing is incredible and I just wanted to share this with you to confirm what you already know. I think you are all amazing. Thank you for your tireless work. All best wishes to you.

My mum is in a nursing home in Scotland and was verbally abused by a carer. When we made a complaint to management my mum was served with eviction notice within 28 days. This upset me greatly so I decided to set up petition to have law changed that elderly can't be evicted for family complaining. We have since been banned from contacting my mum on a page the home had for families. The manager put up a post on this page making slanderous allegations investigating by the police but that the families allegations were false. I think this is very unprofessional conduct by a manager. Now we have grave concerns over my mum that something more than verbal abuse took place. My mum has vascular dementia heart condition suffers seizures and has had several strokes. Anytime family complain we are threatened with eviction. Surely this can't be right we are all concerned for my mum we can't contact her ?”

I would like to raise awareness to how poorly our elderly are treated and even more so with dementia .
My mum was in a care home ( not nursing ) she took ill two weeks ago
We were told it was a chest infection. No symptoms for covid -19.
Mum was given antibiotics but as we know they don’t always work , Sunday last week I asked the care home call 111 for a doctor to come out . The doctor gave mum more antibiotics and advised it was a chest infection . The doctor said she needed hospital but again told us to wait see if the antibiotics kick in over the next twenty four hours . Due to lack of knowledge & training as they are only HCA ‘s ,mum mum was just left
I face timed mum Tuesday and I could see how very poorly mum was & insisted they call 111 . The doctor called me at 2 am to say he had spoken to the home staff, and the kindest thing for mum was to prepare for end of life. No one saw mum , the staff have no nursing qualifications. How can he make this call?.
I called mums new GP the following morning, he knew I was stressed & upset , assuring me he would get the paramedics to go check mum out.
He spoke to the home called me back told me no he wasn’t doing that , she was end of life. I asked , begged in fact , the home to call paramedics , they told me it would be classed as safe guarding if they called them .
The senior director went to assess mum and her words , she called back and said no more actions to be taken she was end of life . No one has a medical background.
They allowed me to put PPE on and visit mum . Then mum was left with no medication at all, no end of life comfort in our view was given .
Mum tested positive to corona yesterday & she passed away on her own around 6.30 pm .
They had promised me they would be with her but no one was .
I know the carers have tried their very best as I know they felt powerless ..
Heartbreaking to think my wonderful mum was treated like this & no one would help or listen.
I understand we are in a pandemic & it’s awful times but procedures
Should have been put in place to help & treat the elderly .
I will fight for all the others in honour of my mum. .

I've been overwhelmed with the support and information I've received from Care Campaign for the Vulnerable. I really could not have coped with the pressure over the last few weeks if it hadn't been for the constant contact I’ve had from this organisation. My Mother’s situation started to change at such speed when they become involved. I will always be grateful for the vast amount of knowledge, comfort and support Care Campaign for the Vulnerable has provided my mother and myself with.
Thank you.